Developmental Disability News with a Focus on NYS

Applications Open for Autism Campus Inclusion (ACI) Leadership Academy

The Autism Campus Inclusion (ACI) Leadership Academy helps autistic students learn to make their college campuses better for people with disabilities. ACI participants learn about making student groups, understanding disability policy, and talking to people in power.

Past students have learned new skills and information about:

After ACI, students get help from ASAN to meet their advocacy goals at their college. ACI 2025 will be held from July 14 – July 20, 2025.

This year’s ACI program will be held virtually.

To apply for Autism Campus Inclusion (ACI) you must:

Students of color, LGBT students, low-income students, students with intellectual disabilities, AAC users, and students from other marginalized communities to apply are especially encouraged to apply.

Deadline: Sun., March 9th, 2025

Email to: Dean Strauss, dstrauss@autisticadvocacy.org.

Contact: If you need assistance or accommodations at any stage, or have any questions about ACI, contact Dean Strauss, dstrauss@autisticadvocacy.org.

More Developmental Disability News for Week Ending Jan. 17, 2025

The DSP crisis, New Jersey’s I/DD ombudsman’s asks gubernatorial candidates to get serious about disabilities, caregiver confessions, and more news for the week ending Jan. 17, 2025.

Spotlight: Direct Support Professionals (DSPs)

The lack of a living wage for the DSP workforce is a disgrace. So I  was so thrilled to see The Nation dig into the labor crisis with a piece that underscores how action is desperately needed.

The Labor Crisis Putting People With Disabilities at Risk (Thenation.com)

A few excerpts:

New York

Sheriffs launch Blue Envelope program statewide The New York State Sheriffs’ Association announced the statewide implementation of the Blue Envelope program. (Times Union)

NY Governor Approves Long-Sought Law Blocking Payments for ‘Broken’ Adoptions Additional legislation signed into law will identify the needs of kids in the system living with a developmental disability. (imprintnews.org)

NYC spent $1.3B on private education for students with disabilities last year The spending has continued to skyrocket despite efforts to serve more students with disabilities within the public school system. (Gothamist)

Dutchess County Launches Think Accessible Stakeholder Group to Enhance Community Accessibility (Dutchessny.gov)

20 things you don’t know about me: John Levendosky, special ed teacher (Times Union)

Nicholas Center in Port Washington helps people with autism who age out of school (Newsday.com)

CDPAP

Rep. Torres re-ups call for probe of $9B Medicaid home care contract of New York The “Hochul administration has handed a de facto sole-source contract … to PPL while at the same time receiving consultation about Medicaid reform from PCG, whose executives just happen to have a 25% ownership interest in PPL.” (spectrumlocalnews.com)

NYS pushes back against ad campaign criticizing change in home health aide program The state health commissioner counters what it calls “lies” in a campaign from lobbying group The Alliance to Protect Home Care over control of the Consumer Directed Personal Assistance Program. (Newsday.com)

Opinion: Hochul’s Threat to New York’s Home Health Care “As a quadriplegic New Yorker and caregiver team, we know that for many disabled or chronically ill people … any disruption to CDPAP would be inhumane.” (Daily News)

Outside of New York

Candidates for NJ governor, please make people with disabilities a priority | Opinion “As you know, disabilities affect people across every community, every socioeconomic group, every political party. Indeed, I would venture to guess that every New Jersey family includes someone — a close relative or friend — who has at least one disability. And I would venture to guess that many of them have not been able to obtain the support and services that they need and deserve.” (northjersey.com)

Autism awareness program launched by South Jersey police (Fox29.com)

Waterbury, Conn., police get training on interacting with people with autism and other disabilities (wtnh.com)

Caregiving

Caregiver Confessions: ‘How Much More Can We Take?’ Eleven people share their fears, resentments, and guilt. (New York Magazine)

Health

Q&A: Why physicians struggle to care for patients with disability (Statnews.com)

Whiplash

Top scholar says evidence for special ed inclusion is ‘fundamentally flawed” Last week, I posted a piece from NPR on how well students with disabilities do in integrated settings per numerous studies. A paper coming out this spring says not so fast. (Hechingerreport.org)

More on Education

Project 2025’s Plan to Dismantle Public Education—And Screw Over Disabled Kids (Motherjones.com)

L.A. Fires

Studies have shown that natural disasters disproportionately affect persons with disabilities. Here, some reports out of the Los Angeles-area fires.

Altadena family says disabled father and son were left to burn: ‘Nobody was coming  (Los Angeles Times)

Fleeing the LA fires alone on a wheelchair: ‘I had to take my chances’  (theguardian.com)

In California wildfires, disabled people may be left behind (sf.curbed.com)

Autism

Autism Affects More Than 60 Million Worldwide, Study Finds As of 2021, researchers found that 1 in 127 people worldwide were on the spectrum, according to findings published recently in the journal The Lancet. (Disability Scoop)

Check out the Public Policy Goals of the Autism Society of America for the 119th Congress and the Administration (Autism Society)

SSI

SS Benefits to Change Under New Bill: Here’s Who’s Impacted A look at the bill introduced by U.S. Senators Jerry Moran (R-Kan.) and Chris Van Hollen (D- Md.) that aims to remove the penalty on disability benefits for SSI recipients who choose to marry. (Newsweek)

Medicaid

Under Trump, Medicaid Faces a ‘Reset Moment’ Lawmakers in all states are wondering what sort of cuts may be coming. (Governing.com)

HCBS

Q&A: How this federal court ruling helps nursing home residents with disabilities A federal court ruled that the District of Columbia unlawfully segregated people with disabilities, stressing the importance of access to home and community-based services (HCBS). (statnews.com)

Think Differently

Biden Signs Think Differently Database Act into Law The online clearinghouse will provide localized, searchable information on Medicaid services, health care, mental health care and other critical supports for people with disabilities and their families. (Ancor.org)

Meet the New Chairs on the NYS Senate and Assembly Disability Committees

Welcome to the 2025 legislative session, where two positions crucial to the welfare of the intellectual and developmental disability community have been filled.

New York State Sen. Patricia Fahy has been appointed as Chair on the Senate’s Standing Committee on Disabilities for the 2025-26 session, and Assemblymember Angelo Santabarbara Chair on the Assembly’s People with Disabilities Committee.

“OPWDD looks forward to working with the new legislative Chairs of the Senate Disabilities Committee and Assembly People with Disabilities Committee … to further advance supports and services for people with developmental disabilities,” OPWDD Acting Commissioner Willow Baer shared with The Boost in an email.

“Both members have a history of working closely with our agency in support of issues that benefit people with developmental disabilities and their frontline support staff,” Baer continued, “and we are excited about the leadership and advocacy these new chairs will bring.”

Fahy replaces Sen. John Mannion, who left the state Senate to join Congress, while Santabarbara takes the slot formerly filled by Assemblymember Rebecca Seawright, who has been appointed Chair of the Aging Committee.

 

View this post on Instagram

 

A post shared by Patricia Fahy (@patfahy46)

First elected in 2012, Fahy, in her role in the State Assembly, served as Chair of the Assembly’s Higher Education Committee, and served on four additional committees as well. In 2019, she received the NYS Industries for the Disabled’s (NYSID) Legislative Champion Award for work on behalf of individuals living with developmental disabilities.

You can contact the senator’s office at (518) 455-2225, Fahy@nysenate.gov.

Santabarbara has long championed disability issues. His official bio notes that his son Michael, has autism: “This life-altering event prompted Angelo to transition from his more than 15-year career as a civil engineer to embark on a path of public service and advocacy for people with disabilities.”

RELATED NEWS: NY State Assemblyman Angelo Santabarbara’s Personal Mission of Advocacy on Behalf of New Yorkers with Disabilities (Autism Spectrum News)

Below is Santabarbara presenting a proclamation from the Assembly recognizing the Autism Society Greater Hudson Region, New York for 30 years of service and supports.

 

View this post on Instagram

 

A post shared by Angelo Santabarbara (@asmsantabarbara)

Santabarbara was elected to the Assembly n 2012. He’s a member of several committees, including on Mental Health, and has been involved in several pieces of disability-related legislation,

You can contact Santabarbara’s office at 518-455-5197, SantabarbaraA@nyassembly.gov.

More Developmental Disability News for Week Ending Jan. 10, 2025

CDPAP’s bumpy road continues, a N.J. gubernatorial candidate says people with disabilities would be a priority, Congress extends Autism CARES Act, and more developmental disability news for week ending Jan. 10, 2025.

Spotlight: Jackie Ceonzo

New York City mom sets out to improve life for her son with autism (Good Morning America)

Jackie Ceonzo, founder and executive director of the nonprofit SNACK & Friends and a lead advocate with the Coalition for Self Direction Families of NYS (C4SD), was given a much-deserved segment on Good Morning America’s Trailblazing Women series.

The segment shares the story of Ceonzo’s oldest son, Joey, being diagnosed with severe autism at a time autism was not part of the national conversation. After Joey was turned down from participating in even special needs activities, Coenzo says, she got to work, launching SNACK in 2003.

“As a country we have not invested in this population at all,” Ceonzo tells GMA. “We’ve just kicked the can down the road.”

New York

Another Voice: Direct service professionals need our support NYS Assemblywoman Karen McMahon on the critical need for the state to include a 7.8% Medicaid pay rate increase “to stabilize services for people with disabilities.” (Buffalonews.com)

Kids with dyslexia still leaving NYC public schools despite Mayor Adams’ pledge “The dysfunctional system that divides students who struggle to read between the haves and have-nots largely persists.” (Gothmist.com)

State to review traumatic brain injury care The legislation directs the state’s Traumatic Brain Injury Services Coordinating Council to conduct a statewide review of brain injury care. (Times Union)

Mother’s dedication to helping daughter inspires traumatic brain injury legislation in N.Y.  (Spectrumlocalnews.com)

Buffalo Niagara International Airport to launch Hidden Disabilities Sunflower program (Spectrumlocalnews.com)

Consumer Directed Personal Assistance Program (CDPAP)

What to know as NYS begins CDPAP transition amid legal limbo For one, aides may not be paid the same rate they earn now, but Public Partnerships isn’t ready to say how much aides will be offered. (Times Union)

Judge puts CDPAP transition partially on hold The order prevents the DOH from requiring All-American Homecare to convey to “any third party” information about consumers and their personal care workers. (Waer.org)

Court ruling throws wrench in New York state’s Medicaid home care program transition The decision sets a precedent that could open the transition up to other legal challenges of companies transferring confidential patient data. (Spectrumlocalnews.com)

Over 1,000 callers hit new Medicaid home care transition hotline What a mess, although the article notes that one group had people call in before the hotline’s official start. (Spectrumlocalnews.com)

Outside of New York

Sweeney: As NJ governor, I will make people with disabilities a top priority | Opinion (Northjersey.com)

DOJ finds Oklahoma City police discriminate against people with behavioral disabilities The city unnecessarily institutionalizes adults with mental illness and the police department often escalates crisis situations. (AP)

Kentucky mother wants to expand who can have cameras in residential facilities (Kentuckylantern.com)

New Alabama law requires firefighters to complete invisible disabilities training NYS, FYI, has no mandate, but does offer first responder training. (Wsfa.com)

Education

Special ed students benefit from being integrated at school. It doesn’t always happen (NPR)

AI is a game changer for students with disabilities. Schools are still learning to harness it Getting the latest technology into the hands of students with disabilities is a priority for the U.S. Ed Dept. Of course, there are concerns. (AP)

Autism

Congress extends Autism CARES Act for 5 more years The federal law will provide nearly $2 billion for research, training and services, including for early detection and interventions. (k12dive.com)

How Electroconvulsive Therapy was life-changing for one teen with autism and catatonia (Colorado Public Radio)

Genetic Testing May Alter Care For Almost Half With Neurodevelopmental Disorders A new study finds that 42% of those who did genetic testing learned that they had or likely had a rare genetic condition. (Disability Scoop)

Medicaid

Ed Dept pulls school-based Medicaid proposed rule Supporters said the rule make it easier for schools to be reimbursed for school-based Medicaid services. (k12dive.com)

Entertainment

Hollywood’s Disability Coordinators Streamline Production, Expand Access Production Access Coordinators play a burgeoning new role in the entertainment industry. (Thewrap.com)

NYS Webinars for the Week Starting Jan. 10, 2025

WEBINARS & MORE

Ongoing: Brain Injury Association of NYS Support Groups: A variety of times for survivors and caregivers.

January, 2025: OPWDD and National Center for Cultural Competence Family Listening Sessions: Part of an effort to improve communication, language access and outreach to underserved communities. They’re intended to hear about people’s experiences in accessing supports and services based on a family’s cultural beliefs and practices, in your preferred language, and that are appropriate and fair for your family member with IDD. For families currently receiving supports and services, or have received them in the past, or are unable to access supports and services. (Georgetown University National Center for Cultural Competence)

Sat., Jan. 11, 2025: Teen Parent Group- for parents of teenagers with developmental or physical disabilities:From navigating adolescence to managing behaviors and fostering independence, our group provides a safe space for open discussions about all things teen related. (Parent to Parent of NYS)

Mon., Jan. 13, 2025: Parent to Parent of NYS Father Group: Discuss the role of dads in navigating their children’s special needs. (Parent to Parent of NYS)

Tues., Jan. 14, 2025: 10 Basic Financial Steps for Families to Consider: From applying for government benefits and consideration of a letter of intent to a general overview of the ABLE act and special needs trusts. (Rockland Transition Consortium)

Tues., Jan. 14, 2025: Family Forum: Preparing for Your Child’s Annual Review: Explore how parents can effectively prepare for the annual review and be an effective member of the CSE. (Lower Hudson Family and Community Engagement (FACE) Center)

Tues., Jan. 14, 2025Office for People with Developmental Disabilities (OPWDD) Services and Eligibility (WIHD Community Support Network)

Wed., Jan. 15, 2024: OPWDD Self-Direction: The individual must be eligible for OPWDD services and participating in Care Management services through a Care Coordination Organization (CCO) to be approved for self-direction. (WIHD Community Support Network)

Wed., Jan. 15, 2025: Disability Conversations: “Hear Our Voices” Self Advocacy Group Meeting: “Hear Our Voices” Self Advocacy Group Monthly Meeting.

Wed. Jan. 15, 2025: Supported Decision Making. What is it and how to get started: Learn more about it and how to get started with Naomi Brickel from Supported Decision Making New York. (Parent to Parent NYS)

Wed., Jan. 22, 2025: The Future of Paratransit in New York: A panel discussion, consisting of paratransit users and advocates. (New York Association on Independent Living)

Jan. 23, 2025, Jan. 30, 2025 and Feb. 6, 2025:  Self Patience and Compassion: For Parents and Caregivers: Three-part virtual series designed to help you build patience and compassion for yourself while learning tools to stay grounded and present. Open to all. (NYC District 75 and FamilyKind)

SCHOLARSHIPS & AWARDS

2025 Fred J. Epstein Youth Achievement Awards: Nomination deadline is Jan. 15, 2025: The awards from Smart Kids with Learning Disabilities® recognizes the outstanding accomplishments of young people with LD and ADHD who make a lasting impact on their schools and communities.

Photo: Do some self-care in January and February vis the Self Patience and Compassion webinars. (Credit: Max van den Oetelaa, Unsplash.com)

NYS Rec & Entertainment Starting Jan. 10, 2025

Be sure to visit links for more information and, where applicable, to register. If you’d like to share your event or activity on The Boost, please contact us here. It would be great to have more activities around the state.

Sat., Jan. 11, 2025: Get Fit with Just Right Fitness in Bed-Sty Brooklyn: School-age children with special needs get a work out with a certified trainer while families chat. (Uniquely Me Creative Arts)

Sat., Jan. 11, 2025NY Botanical Garden Holiday Train Show Sensory FriendlySensory Friendly Mornings for a calmer visit to the Holiday Train Show. Additionally, ticket provides access to NYBG’s outdoor gardens and collections.

January, 2025 – June 2025: Decks & Dice: A Young Adults Game Group: Tarrytown, N.Y. For young adults with and without disabilities, ages 21-35, support staff welcome. Every last Sunday of the month. Cost: $5 (Shames JCC on the Hudson)

April 24, 2025: Select Human Services Prom 2025: Select Human Services is hosting its first-ever prom at the Knollwood Country Club in Elmsford for 18 years old and under. Cost: $115 (Select Human Services)

Year-Round:

AMC Sensory-friendly films: There are 10 AMC movie theaters around New York State offering sensory-friendly screenings. Go to the link to find the ones near you.

The Boost’s Guide to the Best Museums for People with Developmental Disabilities Added: Jackie Robinson Museum in Manhattan!

The Boost’s 2024 Westchester County Recreation Resource List (Children and Adults) 

I Love NY’s Accessible Places and Programs

Photo: Play games in Tarrytown! (Credit: Pexels.com)

NYS Webinars for the Week Starting Jan. 3, 2025

Be sure to visit links for more information and, where applicable, to register. If you’d like to share your event or activity on The Boost, please contact us here.

WEBINARS

January, 2025: OPWDD and National Center for Cultural Competence Family Listening Sessions: Part of an effort to improve communication, language access and outreach to underserved communities. They’re intended to hear about people’s experiences in accessing supports and services based on a family’s cultural beliefs and practices, in your preferred language, and that are appropriate and fair for your family member with IDD. For families currently receiving supports and services, or have received them in the past, or are unable to access supports and services. (Georgetown University National Center for Cultural Competence)

Tues., Jan. 7, 2025: CPSE to CSE for Parents: Understand the transition process, learn how to be an active member of the transition team, to understand the difference between services in CPSE and CSE, and to understand the purpose of an IEP. (Mid-Hudson Family and Community Engagement (FACE) Center, NYSED OSE Partnership)

Wed., Jan. 8, 2025: Benefits Planning and Employment in the New Year: Myths and facts about employment and benefits. (The Strong Center for Developmental Disabilities)

Wed., Jan. 8, 2025: Diploma and Credential Options for Students with Disabilities (Mid-Hudson Family and Community Engagement (FACE) Center, NYSED OSE Partnership)

Thurs., Jan. 9, 2025 and Thurs., Jan. 16, 2025: Special Education 101: Virtual Training of the Parent Member: A 4-hour virtual training  where participants will learn about the entire Committee for Special Education (CSE) process, and those eligible can join committee meetings as a volunteer Parent Member. (Mid-Hudson Family and Community Engagement (FACE) Center, Mid-Hudson Regional Partnership Center (MHRPC), NYSED OSE Partnership)

Mon., Jan. 13, 2024: Parent to Parent of NYS Father Group: Discuss the role of dads in navigating their children’s special needs. (Parent to Parent of NYS)

Tues., Jan. 14, 2025: 10 Basic Financial Steps for Families to Consider: From applying for government benefits and consideration of a letter of intent to a general overview of the ABLE act and special needs trusts. (Rockland Transition Consortium)

Tues., Jan. 14, 2025: Family Forum: Preparing for Your Child’s Annual Review: Explore how parents can effectively prepare for the annual review and be an effective member of the CSE. (Lower Hudson Family and Community Engagement (FACE) Center)

Tues., Jan. 14, 2025Office for People with Developmental Disabilities (OPWDD) Services and Eligibility (WIHD Community Support Network)

Wed., Jan. 15, 2024: OPWDD Self-Direction: The individual must be eligible for OPWDD services and participating in Care Management services through a Care Coordination Organization (CCO) to be approved for self-direction. (WIHD Community Support Network)

Wed., Jan. 15, 2025: Disability Conversations: “Hear Our Voices” Self Advocacy Group Meeting: “Hear Our Voices” Self Advocacy Group Monthly Meeting.

Wed. Jan. 15, 2025: Supported Decision Making. What is it and how to get started: Learn more about it and how to get started with Naomi Brickel from Supported Decision Making New York. (Parent to Parent NYS)

Jan. 23, 2025, Jan. 30, 2025 and Feb. 6, 2025:  Self Patience and Compassion: For Parents and Caregivers: Three-part virtual series designed to help you build patience and compassion for yourself while learning tools to stay grounded and present. Open to all. (NYC District 75 and FamilyKind)

SCHOLARSHIPS & AWARDS

2025 Fred J. Epstein Youth Achievement Awards: Nomination deadline is Jan. 15, 2025: The awards from Smart Kids with Learning Disabilities® recognizes the outstanding accomplishments of young people with LD and ADHD who make a lasting impact on their schools and communities.

NYS Rec & Entertainment Starting Jan. 3, 2025

Be sure to visit links for more information and, where applicable, to register. If you’d like to share your event or activity on The Boost, please contact us here. It would be great to have more activities around the state.

Sat., Jan. 4, 2025: Sensory-friendly Mufasa: The Lion King at the Bedford Playhouse

Sun., Jan. 5, 2025: Sensory-friendly Tangled at Jacob Burns Film Center

Sun., Jan. 5, 2025New York City Ballet Sensory-Friendly George Balanchine’s The Nutcracker®Slight modifications include adjustments to lighting and sound levels, designated break areas and additional event staffing to assist with audience needs.

Sat., Jan. 11, 2025NY Botanical Garden Holiday Train Show Sensory FriendlySensory Friendly Mornings for a calmer visit to the Holiday Train Show. Additionally, ticket provides access to NYBG’s outdoor gardens and collections.

January, 2025 – June 2025: Decks & Dice: A Young Adults Game Group: Tarrytown, N.Y. For young adults with and without disabilities, ages 21-35, support staff welcome. Every last Sunday of the month. Cost: $5 (Shames JCC on the Hudson)

Year-Round:

AMC Sensory-friendly films: There are 10 AMC movie theaters around New York State offering sensory-friendly screenings. Go to the link to find the ones near you.

The Boost’s Guide to the Best Museums for People with Developmental Disabilities Added: Jackie Robinson Museum in Manhattan!

The Boost’s 2024 Westchester County Recreation Resource List (Children and Adults) 

I Love NY’s Accessible Places and Programs

Photo credit: Disney’s Tangled, courtesy of Jacob Burns Film Center

More Developmental Disability News for Week Ending Jan. 3, 2025

CDPAP company claims no collusion with New York State in contract win, Connecticut lawmakers prioritize special ed, adults with disabilities under duress, and more developmental disability news for week ending Jan. 2, 2024.

New York

N.Y. rejects claims that state colluded with CDPAP contract winner Plus, a top PPL executive also comes out fighting and says state did not steer the bidding process. (Times Union)

Disabilities Beat: New year, new changes to CDPAP has disabled activists worried WBFO speaks with activist Julie Farrar, who recently went viral for confronting Gov. Kathy Hochul in an Albany mall. (WBFO.org)

Op-Ed | Time to do right for New Yorkers with disabilities Assemblymember Rebecca Seawright, chair of the Assembly Committee on People with Disabilities, puts the focus on Direct Support Professionals. (Amny.com)

Feds approve tax to boost Medicaid reimbursement funds The new tax is expected to generate billions of dollars in additional Medicaid reimbursement funds, but things could change when President-elect Trump takes office. (nystateofpolitics.com)

Parents push for N.Y. to support care of medically fragile children The Complex Care Act, introduced in the last legislative session but not passed, would establish a program where family members would be paid and trained to care for their medically fragile children. (Timesunion.com)

Long Island Parents of neurodiverse children connect through Our Journey Facebook Group (Newsday.com)

Feds: Katz’s Deli agrees to make Manhattan deli ADA compliant Good news for pastrami lovers! (Newsday.com)

WSWHE BOCES adding three buildings in Wilton One space will be for special education, career and technical education. (Timesunion.com)

Outside of New York

Judge rejects 26 NJ towns’ attempt to stop affordable housing law from moving forward (Gothamist)

CT lawmakers to prioritize special education in 2025 session (CTmirror.org)

New Canaan woman inspired by her sister with Down syndrome to create Ridgefield’s Prospector Theater (Newstimes.com)

Colorado’s wildly popular black license plates are powering programs for people with disabilities Some of the money from the throwback license plates are helping fund a new state office created to help people with disabilities get jobs and live independently. (Coloradosun.com)

Rhode Island settles with U.S. DOJ over violating rights of kids with mental health needs The agency found that the Rhode Island Department of Children, Youth and Families (DCYF) had “warehoused” children. (Rhodeislandcurrent.com)

Ohio families seek to retain right to care for disabled children The Ohio Dept. of Developmental Disabilities will force parents to attempt to hire outside care workers for their children. (local12.com, first seen in Medical Motherhood newsletter)

Oklahoma reduces the waitlist for disability services from 13 years to two years This drastic change reportedly is thanks to the state lawmakers giving DHS the funding it needed. (News9.com)

Health

Many Adults with Disabilities Report Frequent Mental Distress: CDC Study (CDC.gov)

3 trends that worry disability advocates in 2025 Increasing use of AI, potential Medicaid cuts, and anti-mask attitudes. (Statnews.com)

Education

A 1975 law helped kids with disabilities access education. Schools now need more help The costs of special education have led to a crisis for many schools. NPR looks back at how we got here. (NPR)

Autism

Inclusivity

Autistic teen ‘let down’ by police, says sister This upsetting story out of Northern Ireland shows the importance of training police in how to communicate with people with complex needs. (BBC.com)

Travel

Check out America’s 9 most accessible national parks, according to reviews (USA Today)

Entertainment

Accessibility Is Worth Investing In: Why Hollywood Must Prioritize Disability Inclusion (Variety)

Highlights from OPWDD’s Just-Released 2024 Strategic Plan Annual Report

In November, 2022, New York State’s Office for People with Developmental Disabilities (OPWDD) officially released a five-year plan called, sensibly, the Strategic Plan 2023-2027. A guide to the agency’s policy and planning efforts for the next several years, its goal is to better meet the needs of the approximately 130,000 people OPWDD serves statewide.

As part of this effort, OPWDD must produce, by law, an annual report on its efforts and progress. Its 2024 OPWDD Annual Report, released in mid-December, 2024, adds more concrete outcome metrics, data, and infographics than in the 2023 report (its first), as well as information on OPWDD’s Short-Term Housing Strategy.

That strategy is “intended to offer solutions to some of the most frequently heard concerns regarding the sustainability of Certified Residential Services,” according to Willow Baer, OPWDD acting commissioner, on the agency’s website.

FYI, in support of this strategy, OPWDD separately released information on its updated Certified Residential Opportunities guidance in the form of an Administrative Directive Memorandum (ADM) describing how the agency will manage Certified Residential Opportunities going forward.

The announcement notes that “OPWDD is committed to supporting people to live in a home of their choice where they can be part of their community. Part of upholding that commitment is identifying residential opportunities as soon as they become available and matching those opportunities with people who need the support of certified residential services, particularly those with the most immediate needs. To provide consistency and to enhance efficiency in this process, OPWDD is launching a multiple stage initiative to amend the process.” That ADM is Stage 1.

Below, some cherrypicked highlights from the 2024 Annual Report:

Medicaid Spending

Direct Support Professionals

Self-Direction (SD)

Crisis and Complex Needs Efforts

Care Coordination