Intellectual and Developmental Disability News

US supreme court dismisses Alabama’s bid to execute intellectually disabled man (The Guardian)

NYC promises new scorecards and more efficient routes for dysfunctional school bus system (Chalkbeat)

Arizonans with disabilities depend on at-home services. Medicaid cuts could erode the program (KJZZ.com)

‘Makeshift Fight Club’: Arkansas Private School Founder Punished for Abuse of Disabled Student (Disabled Journalists Assn.)

New bill requires autism awareness training for Florida law enforcement (WESH.com)

The Philadelphia school district will phase out a special ed program (Chalkbeat)

Families caring for disabled relatives face unthinkable choices as Medicaid cuts loom (NBC News)

Trump administration proposes crackdown on Medicaid state-directed payments (Healthcare Dive)

RFK Jr. announces ‘the largest autism fraud bust in American history’  (Politico)

Vance takes his fight against fraud to red state Ohio (AP)

Calif. Condemns Federal Deferral of IHSS Funds (Calif. Dept. of Health Care Services)

More states are offering caregiver tax credits for families — but they only offset a fraction of expenses (Marketwatch)

Kids Keep Getting Stuck in Hospitals, Even After Being Cleared for Discharge  (KFF Health News)

Overworked and understaffed: Special ed teachers turn to AI for help (NPR)

Risks and Priorities in Federal Disability Measurement (Urban Institute)

2024-25 Data at a Glance: I/DD Family Surveys (NCI IDD)

Mom’s Facebook plea may help son with disabilities walk at graduation (USA Today)

Fashion Celebrates Girls With Disabilities (Today.com)

Intellectual and Developmental Disability News for Week Ending May 22, 2026

SPOTLIGHT: SUPREME COURT

The Supreme Court threw out a challenge by the state of Alabama to a judicial finding that a death row inmate convicted of a 1997 murder is intellectually disabled and thus ineligible for the death penalty.

The Guardian explains that “because of a major 2002 supreme court precedent that executing an intellectually disabled person violates the constitution’s eighth amendment ban on ‘cruel and unusual punishment’, Alabama could not execute Smith. But that landmark ruling left it to the states to set standards for eligibility.”

It also reports that Justice Sotomayor, in her concurring opinion, said that “’the court is not equipped to provide any meaningful guidance on how courts should assess multiple IQ scores. That is because the differences between methods used to assess multiple IQ scores raise complicated questions on which even experts may disagree.”

Or, as Disability Scoop‘s headline put it, the court Punts On Deciding How Intellectual Disability Is Defined (paywall).

STATES

NYC promises new scorecards and more efficient routes for dysfunctional school bus system Of the 145,000 students reliant on yellow bus service, roughly 43% are children with disabilities. (Chalkbeat)

Arizonans with disabilities depend on at-home services. Medicaid cuts could erode the program Another look at what can happen to people with disabilities when essential services are cut.  (KJZZ.com)

‘Makeshift Fight Club’: Arkansas Private School Founder Punished for Abuse of Disabled Student (Disabled Journalists Association)

New bill requires autism awareness training for Florida law enforcement A mom got the whole ball rolling. (WESH.com)

Michigan’s use of AI to process SNAP applications draws concerns about past automation failures (Michigan Advance)

Minn. counties welcome state funds to overhaul old technology to administer SNAP, Medicaid (MPR News)

NC families with disabled children press lawmakers to maintain funding as federal Medicaid cuts loom (North Carolina Health News)

The Philadelphia school district will phase out a special ed program Intensive Learning Support is meant to boost students significantly academically behind their peers. The move is “an effort to educate more special education students alongside their peers.” (Chalkbeat)

MEDICAID

Families caring for disabled relatives face unthinkable choices as Medicaid cuts loom (NBC News)

Trump administration proposes crackdown on Medicaid state-directed payments (Healthcare Dive)

AHA STATMENT: CMS issues proposed rule on Medicaid supplemental payments Medicaid “is a lifeline for tens of millions of Americans — children, seniors, people with disabilities and hardworking individuals. [The] proposed rule raises important questions about how the statutory requirements will be implemented and the potential impact on providers’ ability to rely on critical Medicaid payments.” (American Hospital Assn.)

MEDICAID ‘FRAUD’

RFK Jr. announces ‘the largest autism fraud bust in American history’  The Dept. of Justice has arrested and indicted 15 people in Minnesota for alleged fraud schemes involving $90 million in Medicaid funds. James Clark, inspector general at Minnesota’s Department of Human Services, said his department stopped payments to some of the businesses connected to the charges more than a year ago and has already opened investigations and withheld payment to 11 of the 15 people charged. (Politico)

Vance takes his fight against fraud to red state Ohio (AP)

Ohio Gov. DeWine pushes back as GOP leaders blame administration for Medicaid fraud (Columbus Dispatch)

Calif. Condemns Federal Deferral of IHSS Funds CMS deferred $1.1 billion in federal funding tied to the state’s In-Home Supportive Services program, which serves some 905,000 seniors, children and people with disabilities with basic needs, citing fraud concerns. (Calif. Dept. of Health Care Services)

California Legislators Reject Cuts to In-Home Supportive Services in Proposed State Budget Some 31 Assemblymembers and Senators signed a letter rejecting proposed cuts to IHSS. (Sierra Sun Times)

CAREGIVERS

More states are offering caregiver tax credits for families — but they only offset a fraction of expenses Connecticut is poised to become the third state (after Oklahoma and Nebraska) offering the tax credit. (Marketwatch)

OPINION: The caregivers you’ve never heard of are in crisis (The Hill)

AUTISM

Leucovorin Scripts Surged Even Before White House Autism Push Well, not too much before. It apparently followed a February 2025 CBS News segment featuring a family who reported dramatic language improvements in a child after treatment. (MedPage Today)

HEALTH CARE

Kids Keep Getting Stuck in Hospitals, Even After Being Cleared for Discharge  (KFF Health News)

EDUCATION

Overworked and understaffed: Special ed teachers turn to AI for help With legally required paperwork, including IEPs, a big part of burn-out, some turn to AI to help speed up the work. (NPR)

HIGHER ED

States sue over new student loan limits on certain nursing and healthcare degrees They limit access for borrowers earning a graduate degree in several healthcare-related fields. (NPR)

REPORTS & STUDIES

Risks and Priorities in Federal Disability Measurement Recent shifts in the approach to collecting and using data have raised concerns about how we measure and understand disabled people, their experiences and their protections. (Urban Institute)

2024-25 Data at a Glance: I/DD Family Surveys The data demonstrate how state Developmental Disability systems are impacting families. (NCI IDD)

ABLEISM

Mom’s Facebook plea may help son with disabilities walk at graduation A Texas mother’s now-viral Facebook post said school officials told her that her son would “take too long” to walk across the stage.(USA Today)

GOOD IDEAS

Fashion Celebrates Girls With Disabilities Fashion brand Alivia partners with a N.C. camp where participants work on every stage of the process, from initial design to marketing to walking in a fashion show. (Today.com)

Homepage for week ending may 15, 2026

JD Vance threatens health funding to states that don’t comply with White House anti-fraud effort

WATCH: Vance and Oz announce numerous moves on Medicaid and Medicare fraud, focusing on Democratic-run states

Ohio introduces new Medicaid fraud prevention initiatives (Spectrum News 1)

OPINION: Republicans Push “Waste and Fraud” Narrative Again to Gut the Social Safety Net (Truthout.org)

Ed Department to release $144M for special education, early intervention (K-12 Dive)

Wealthy Students More Likely to Get Disability Accommodations, Study Finds (The 74)

Why emotional disturbance, a special ed category, is a double-edged sword for students (NPR)

Antidepressants in Pregnancy: What a New Study Found (MedPage Today)

Azithromycin use in late pregnancy may pose less risk of neurologic issues in babies than other antibiotics (Univ. of Minnesota/CIDRAP)

This high Schooler Developed an A.I. Tool to Diagnose Autism and ADHD Using the Retina (Smithsonian)

AMA announces educational video series on caring for people with disabilities (HME News)

Native kids with disabilities held in wooden boxes in upstate NY school district. Reforms are coming (NPR)

The Grand Tradition of Suing for School Tuition (New York Magazine)

Nebraska demands proof, but shared living provider says 400 pages weren’t enough to keep patient’s funding tier (1011now.com)

In Texas, Houston Independent School District is under federal investigation over plans to restructure special ed services (Houston Public Radio)

Deal to cut taxes, boost special ed funds, dies in Wisconsin Senate (WPR.org)

This app lets kids with disabilities use devices with their minds. Now anyone can download it (CBC Radio)

Autism and health (Autism Speaks)

Intellectual and Developmental Disability News for Week Ending May 15, 2026

SPOTLIGHT: MEDICAID ‘FRAUD’

The hunt for fraud is heating up. Below, some of this week’s major headlines, with summaries focusing on Medicaid.

JD Vance threatens health funding to states that don’t comply with White House anti-fraud effort

Attorneys general in all 50 states reportedly received a letter from the inspector general at the Dept. of Health and Human Services (HHS) warning states to investigate alleged Medicaid fraud or risk losing funding. This comes on the heels of HHS Secretary Robert F Kennedy Jr. accusuing some home health aides, including family members who take care of disabled people under Medicaid-funded Home- and Community-Based (HCBS) programs, of fraud.

Andy Schneider at Georgetown University’s Center for Children and Families told The Guardian that “there’s no statutory or regulatory basis for withholding all of a state’s federal Medicaid matching funds due to non-performance by a MFCU [Medicaid Fraud Control Units]. … Republican anti-fraud programs are [about] stripping away capacity in order to punish political rivals.” (The Guardian)

WATCH: Vance and Oz announce numerous moves on Medicaid and Medicare fraud, focusing on Democratic-run states

“In at least one case, the administration has erred in its accusations against states,” PBS reports. “In April, CMS acknowledged to The Associated Press that it made a significant error in figures it used to help justify a fraud probe in New York.” This raised a common criticism that the second Trump administration “tends to attack first and confirm the facts later.” (PBS.org)

Ohio introduces new Medicaid fraud prevention initiatives (Spectrum News 1)

OPINION: Republicans Push “Waste and Fraud” Narrative Again to Gut the Social Safety Net (Truthout.org)

RELATED HCBS INFO

The National Disability Navigator Resource Collaborator recently posted Toward Holistic Health Services under Medicaid, which explained why, as an optional benefit under Medicaid, HCBS are at risk of deep cuts as federal Medicaid funding is reduced.

In hopeful news, it notes that in April federal legislative proposals — the HCBS Access Act and Long-Term Care Workforce Support Act — were reintroduced to ensure comprehensive HCBS coverage under Medicaid, along with the adequate workforce funding needed to sustain it. (NDNRC)

FEDERAL BUDGET

FY 27 Appropriations  The Autism Society has a good summary of what might be in the upcoming budget, noting that “together, these changes could weaken critical supports.” (Autism Society)

EDUCATION

Ed Department to release $144M for special education, early intervention The announcement also included guidance to states on using IDEA funds to help expectant parents of children with disabilities. (K-12 Dive)

Takeaways from McMahon hearing on Ed Dept priorities Lawmakers pressed the Ed secretary  about progress in addressing a backlog of civil rights complaints. A recent report found OCR had reached agreements in only 1% of pending cases in 2025. (K-12 Dive)

Wealthy Students More Likely to Get Disability Accommodations, Study Finds Study finds that wealthy families were twice as likely as poorer ones to be granted accommodations under the federal law Section 504 — but that IEP recipients much more likely to come from low-income families than well-off ones. (The 74)

Why emotional disturbance, a special ed category, is a double-edged sword for students (NPR)

AUTISM

Antidepressants in Pregnancy: What a New Study Found No clear link was found between prenatal antidepressant exposure and autism or ADHD in kids. (MedPage Today)

Azithromycin use in late pregnancy may pose less risk of neurologic issues in babies than other antibiotics (Univ. of Minnesota/CIDRAP)

Many genes have been linked to autism – but a new study suggests it may be their path to the brain that matters (Yale News)

This high Schooler Developed an A.I. Tool to Diagnose Autism and ADHD Using the Retina (Smithsonian)

New Findings on Conflicts of Interest in Autism Research A new study examined autism intervention research published in eight Applied Behavior Analysis journals. One data point: 78% of authors were paid ABA providers, paid ABA consultants, or both. (Psychology Today)

HEALTH CARE

AMA announces educational video series on caring for people with disabilities (HME News)

Feds to Reconsider Rule Barring Disability Discrimination in Healthcare HHS published an interim final rule putting off the deadline for healthcare providers to ensure that their websites and mobile apps meet certain accessibility standards. (Disability Scoop/paywall)

STATES

Note: This starts with New York, where a majority of The Boost’s readership currently is based, and continues alphabetically by state.

NYS Assembly passes bill requiring immediate parent notice of school abuse claims (CBS 6 Albany)

Native kids with disabilities held in wooden boxes in upstate NY school district. Reforms are coming (NPR)

The Grand Tradition of Suing for School Tuition This is an interesting article with no easy takeaway. It starts with the premise that the city spends over a billion a year on special-ed lawsuits brought, mostly, by white parents and notes that the rate of claims per student in New York State is 10 times higher than the national average. (New York Magazine)

Nebraska demands proof, but shared living provider says 400 pages weren’t enough to keep patient’s funding tier (1011now.com)

In Texas, Houston Independent School District is under federal investigation over plans to restructure special ed services (Houston Public Radio)

Deal to cut taxes, boost special ed funds, dies in Wisconsin Senate (WPR.org)

TECH

This app lets kids with disabilities use devices with their minds. Now anyone can download it (CBC Radio)

STUDIES & REPORTS

Rural residents less likely to receive HCBS than urban counterparts (McKnights)

Justice Denied: How Trump’s Office for Civil Rights Reached a 12- Year Low in Protecting Students from Discrimination (US Senate)

Autism and health (Autism Speaks)

Home page May 8 2006

Who gets to speak for mothers of autistic children? (The 19th News)

Aluminum in vaccines not linked to autism, other health problems (Univ. of Minnesota CIDRAP)

OPINION: Profound Autism Is Difficult Enough Without This Debunked Method (The New York Times)

Minnesota Senate passes measure to ensure people with disabilities don’t lose services when providers are accused of fraud (Kare11.com)

Many Minnesotans rely on programs under scrutiny for fraud (Star Tribune)

Minnesota Legislature passes office of inspector general bill aimed at preventing fraud (News from the States)

Republicans Claim Widespread Food Stamp Fraud. What’s Missing: Hard Evidence. (Mother Jones)

U.S. Rep Rob Menendez seeks hotline for caregivers of individuals with developmental disabilities (Hudson County View)

Support Cracks for Bill Banning 24-Hour Home Care Shifts (The City)

Private schools, public dollars: A staggering racial gap in NYC special ed tuition payments (Chalkbeat)

Best Buddies Launches Its First Inclusive Living Community in NYC in Collaboration With Future Centered Care (Best Buddies/Future Centered Care)

CT lawmakers approve caregiver tax credit (NHPR)

Colorado overhauls school oversight for students with disabilities (Fox21news.com)

Colorado Medicaid cuts pose concerns for locals with disabilities (The Daily Sentinel)

Parents say new TN law could limit education options for children with disabilities (wkrn.com)

How a legal challenge over gender dysphoria became a fight for disability rights (News from the States)

Indiana withdraws from lawsuit challenging federal disability protections (Indiana Capital Confidential)

Feds proceed with $5.6M special education spending study  (K-12 Dive)

School data goes stale after Trump administration cuts Education Department research arm (Chalkbeat)

Family caregiving inflicts emotional, financial toll, new US News survey finds (McKnights Home Care)

For Texans with disabilities, voting can take weeks — or be out of reach (Texas Public Radio)

Intellectual and Developmental Disability News for Week Ending May 8, 2026

AUTISM

Who gets to speak for mothers of autistic children? Controversial changes to the federal Interagency Autism Coordinating Committee (IACC) include public members dedicated to “causes unsupported by mainstream scientific research.” Think MAHA moms. “When I look at the committee, I just see a sea of Whiteness,’ said a former member. (The 19th News)

Aluminum in vaccines not linked to autism, other health problems (Univ. of Minnesota CIDRAP)

OPINION: Profound Autism Is Difficult Enough Without This Debunked Method An historian of medicine  writes that the science doesn’t back up the alleged success of Facilitated Communication. (The New York Times)

MEDICAID ‘FRAUD’

Minnesota Senate passes measure to ensure people with disabilities don’t lose services when providers are accused of fraud (Kare11.com)

Many Minnesotans rely on programs under scrutiny for fraud (Star Tribune)

Minnesota Legislature passes office of inspector general bill aimed at preventing fraud (News from the States)

SNAP

Republicans Claim Widespread Food Stamp Fraud. What’s Missing: Hard Evidence. Much of the Foundation for Government Accountability’s rhetoric hearkens back to the Reagan-era myth of the “welfare queen.” (Mother Jones)

CAREGIVERS

U.S. Rep Rob Menendez seeks hotline for caregivers of individuals with developmental disabilities I first saw this news in Disability Scoop, which has a paywall, but you can find its story here. (Hudson County View)

STATE NEWS

Note: This starts with New York, where a majority of The Boost’s readership currently is based, and continues alphabetically by state.

Disabled New Yorkers Oppose Bill to End 24-Hour Shifts for Home Aides The “No More 24” bill has turned allies into opponents, pitting workers’ rights activists against disability advocates and those who need round-the-clock care. (The City)

Support Cracks for Bill Banning 24-Hour Home Care Shifts (The City)

Private schools, public dollars: A staggering racial gap in NYC special ed tuition payments (Chalkbeat)

Best Buddies Launches Its First Inclusive Living Community in NYC in Collaboration With Future Centered Care I don’t usually run press releases, but this seems exciting given that the Manhattan location hopes to serve as a scalable model for inclusive housing across the five boroughs for neurodiverse adults. (Best Buddies/Future Centered Care)

CT lawmakers approve caregiver tax credit (NHPR)

Colorado overhauls school oversight for students with disabilities (Fox21news.com)

Colorado Medicaid cuts pose concerns for locals with disabilities Another example of the unfolding crisis. (The Daily Sentinel)

Parents say new TN law could limit education options for children with disabilities The bill reportedly prevents parents from transferring funds to an educational savings account that can help pay for specialized tutoring, supplies and their choice of education for their child. (wkrn.com)

SECTION 504 LAWSUIT

How a legal challenge over gender dysphoria became a fight for disability rights (News from the States)

Indiana withdraws from lawsuit challenging federal disability protections (Indiana Capital Confidential)

Amid lawsuit, Montana disability rights groups celebrate federal protections (Montana Free Press)

EDUCATION

Feds proceed with $5.6M special education spending study  A long anticipated national study of special ed spending by the U.S. Dept. of Education is asking for clearance from the White House’s Office of Management and Budget to begin its work. (K-12 Dive)

School data goes stale after Trump administration cuts Education Department research arm “We no longer have easily accessible, relatively up-to-date information about the basic realities of American schools.” (Chalkbeat)

CAREGIVING

Family caregiving inflicts emotional, financial toll, new US News survey finds (McKnights Home Care)

VOTING

For Texans with disabilities, voting can take weeks — or be out of reach (Texas Public Radio)

OPINION

GOOD IDEAS

New York City Ballet dancers teaching choreography to group with disabilities (abc7ny.com)

Homepage for May 1 2026

ANCOR Issues Response to Robert F. Kennedy, Jr.’s Concerning Remarks About Home- and Community-Based Services (ANCOR)

What RFK Jr. said to Congress shows he doesn’t understand disability policy (ASAN)

The Trump Administration Aims to Penalize Disabled Adults Who Live With Their Families (ProPublica)

OPINION: My son is a disabled adult. The Trump White House has him in its sights (MS Now)

CMS Unveils Proposed 2028 HCBS Quality Measure Set: What It Means For Home Care Providers (Home Health Care News)

Potential national implications loom as judge sends New Hampshire Medicaid HCBS case to trial (McKnights Senior Living)

Education Secretary Says Department Still Working To Offload Special Ed  Disability Scoop/paywall)

As deadline looms, $289 million in federal education research funding may go unspent (Hechinger Report)

Education Department finalizes rule tightening federal student lending (Higher Ed Dive)

Kennedy’s US advisory board puts focus on ‘profound autism’, improved medical care (Reuters)

New focus on autism fuels debate over splitting the spectrum (PBS)

Here’s what the autism spectrum really looks like (Scientific American)

FDA May Finally Make It Illegal to Shock Autistic Kids as Punishment (Mother Jones)

CDPAP home care workers in New York say new healthcare plan is unaffordable, high costs and limited coverage (WHEC.com)

The Autism Mom Who Turned Miami-Dade Into a Neuroinclusion Model (Miami’s Community Newspaper)

Federal agents, Minnesota investigators raid 5 Twin Cities autism centers as part of fraud probe (CBS News)

Troubled N.J. school district says it may lay off 162 teachers’ aides (NJ.com)

NC moves to rein in soaring autism therapy costs amid fraud concerns (NC Health News)

For Texans with disabilities, voting can take weeks — or be out of reach (Texas Public Radio)

Intellectual and Developmental Disability News for Week Ending May 1, 2026

SPOTLIGHT: HCBS UNDER FIRE

The Trump administration, determined to devalue people with disabilities and their caregivers under the guise of Medicaid “fraud,” struck again.

On April 16, while testifying in front of the U.S. House Ways and Means Committee, Health Secretary Robert F. Kennedy Jr. targeted Medicaid-funded Home and Community-Based Services that pay family members to serve as caregivers. These services are designed to keep people with intellectual and developmental disabilities, including those with complex medical needs, at home, in their communities, and out of institutions.

“These are family members who are getting paid to do things that they used to do as family members for free,” Kennedy testified. “This is rife with fraud because we have no way at CMS to determine whether they actually perform that duty or not. We don’t know whether you drove your grandmother to a doctor’s office.”

Kennedy doesn’t know what he’s talking about. For one, he’s willfully ignoring the national caregiver crisis, and how many family members must leave jobs — and the income they provide — to take care of their loved ones. For families who take care of children with complex medical needs, their new jobs are harder than anything Kennedy can imagine. (Check out Photos Show 24/7 Role Parents Play Caring for Medically Fragile Children at Home, published by The Boost last year, and this Mother Jones report, which looks at the  744 hours of nursing and attendant care one 11-year-old boy in Oregon needs each month.)

RFK’s comments “didn’t just denigrate family caregivers, they denigrated the work of the professionals in our fields by suggesting that all home- and community-based services could just be done by family caregivers, and it should all be done for free,” Barbara Merrill, CEO of ANCOR, told NBC News. “It’s just shocking.” It also left community-based caregivers “gravely concerned” about the future of home care, she added.

More pertinent links:

ANCOR Issues Response to Robert F. Kennedy, Jr.’s Concerning Remarks About Home- and Community-Based Services (ANCOR)

What RFK Jr. said to Congress shows he doesn’t understand disability policy (ASAN)

STUDY: The New Face of Family Caregiving (American Society on Aging)

STUDY: Caregiving in the US 2025 (AARP)

Watch RFK Jr.’s testimony on YouTube.

SSI

The Trump Administration Aims to Penalize Disabled Adults Who Live With Their Families In more terrible news, the rule change would deduct the value of a disabled adult’s bedroom from their SSI allotment, even if the family members they live with qualify for food stamps. “This would mean slashing the benefits of some of the most low-income SSI recipients by up to a third or ending their support altogether.” (ProPublica)

OPINION: My son is a disabled adult. The Trump White House has him in its sights (MS Now)

MORE ON HCBS

CMS Unveils Proposed 2028 HCBS Quality Measure Set: What It Means For Home Care Providers The measures’ effects may be felt downstream and would vary from state to state. (Home Health Care News)

Potential national implications loom as judge sends New Hampshire Medicaid HCBS case to trial The lawsuit claims the state’s underinvestment in its Medicaid waiver program leaves recipients “at serious risk of unjustified institutionalization” by failing to ensure services are provided. (McKnights Senior Living)

EDUCATION

Education Secretary Says Department Still Working To Offload Special Ed Sec. Linda McMahon signaled that her agency still intends to offload programs under the Individuals with Disabilities Education Act and the Rehabilitation Act. (Disability Scoop/paywall)

As deadline looms, $289 million in federal education research funding may go unspent An advocacy group analysis highlighted that roughly 85% of the $77 million designated for special ed research remains unspent and there are no federal notices or documents, “as there usually would be,” detailing plans to launch grant competitions and spend it. (Hechinger Report)

HIGHER ED

Education Department finalizes rule tightening federal student lending The agency kept a contested definition of “professional” student that excludes fields like education and physical therapy from higher loan caps. (Higher Ed Dive)

AUTISM

RFK Jr.’s Unsupported Claims About Tylenol-Autism Study He Called ‘Garbage’ Following his April 16 testimony, RFK Jr., on the 17th, let loose this one. (FactCheck.org)

Kennedy’s US advisory board puts focus on ‘profound autism’, improved medical care Most of the substantive discussion during the meeting revolved around how to define profound autism. (Reuters)

New focus on autism fuels debate over splitting the spectrum (PBS)

Here’s what the autism spectrum really looks like (Scientific American)

FDA May Finally Make It Illegal to Shock Autistic Kids as Punishment The new rule, if finalized by the Trump administration, doesn’t prohibit all types of shock therapy. (Mother Jones)

Autism Misinformation Widespread On Social Media, Study Finds (Disability Scoop/paywall; find the study here)

TOOLKIT: Autism, HHS, and Public Health: Unpacking Robert F. Kennedy Jr.’s Year in Misinformation (ASAN)

STATE NEWS

Note: This starts with New York, where a majority of The Boost’s readership currently is based, and  continues alphabetically by state.

CDPAP home care workers in New York say new healthcare plan is unaffordable, high costs and limited coverage (WHEC.com)

The Autism Mom Who Turned Miami-Dade Into a Neuroinclusion Model The Florida Neuroinclusion Toolkit is for counties, cities, and public agencies looking to build neuroinclusive communities. (Miami’s Community Newspaper)

Federal agents, Minnesota investigators raid 5 Twin Cities autism centers as part of fraud probe (CBS News)

Troubled N.J. school district says it may lay off 162 teachers’ aides (NJ.com)

NC moves to rein in soaring autism therapy costs amid fraud concerns Families say ABA has been life-changing. But a surge in Medicaid spending — and questions about who’s collecting it — has been putting the therapy under scrutiny. (NC Health News)

For Texans with disabilities, voting can take weeks — or be out of reach For many voters with disabilities, the biggest barriers are not the ballot itself, but the systems people rely on to navigate the process on time, including gaps in home care, transportation and access to assistance. (Texas Public Radio)

REPORTS

Caregivers with Disabilities: An Overlooked & Under-supported Caregiving Population (Brandeis)

In the last year, it’s gotten a lot worse” A Qualitative Investigation of Barriers to Disability Benefits in 2025 (DREDF)

GOOD IDEAS

Most fashion mannequins are about a size 2. The Met Gala exhibit is making room for diverse bodies (AP)

Intellectual and Developmental Disability News for Week Ending April 24, 2026

SPOTLIGHT: MEDICAID

Dr. Oz announces a 50-state audit of Medicaid program oversight

They’re going for broke.

On Tuesday, Mehmet Oz,  administrator of the Centers for Medicare & Medicaid Services, announced that the Trump administration will require all 50 states to explain their plans to revalidate some of their Medicaid providers “in a national escalation of anti-fraud efforts that have so far largely focused on specific states,” reports the AP.

To put this in a bit of context, the article notes that, earlier this month, CMS “made a significant error in figures it used to help justify a fraud probe in New York. The acknowledgment deepened doubts in the administration’s methods and raised a common criticism that has been made about the second Trump administration — that it tends to attack first and confirm the facts later.”

This blog post from Georgetown University McCourt School of Public Policy posits that long-standing state-based efforts to combat fraud against Medicaid continue to improve, and that state Medicaid agencies are in the best position to identify and address fraud within their programs. It has lots of interesting data, if you’re up for the read.

And…

Families Defend Disability Services Amid Medicaid Cuts (KFF)

ADA

Trump administration delays rule aimed at improving disability access in schools Public colleges, K-12 schools, local governments and other public institutions will have an extra year to make their digital materials fully accessible for people with disabilities, according to the Dept. of Justice. (NPR)

Trump Administration Casts Doubt On New ADA Rules Disability advocates have argued that the rule was under consideration for more than a decade before it was finalized and that delaying its implementation will harm the very individuals who it is intended to help. (Disability Scoop/paywall)

AAPD and Leading Disability Organizations Respond to DOJ Title II Web Accessibility Interim Final Rule “Extending the compliance deadline … is a profound disappointment and a serious setback for the disability community,” said Maria Town, president and CEO of the American Association of People with Disabilities. (AAPD)

EDUCATION

What Will Life Be Like after the Education Department? Look at What Came Before, Experts Say (The 74 Million)

Early intervention services for young children boost later test scores (The Hechinger Report)

OPINION: School Vouchers Fail the Civil Rights Test. The Federal Program Is No Exception “Public schools exist to serve every child. They are legally required to accept all students and provide the services they need, regardless of their race or ethnicity, disability status, language needs, sexual orientation or academic performance. This obligation is the heart of equal opportunity in our country — and private school vouchers were built to bypass it.” (The 74 Million)

STATE NEWS

After 100 Days, A Look at Mamdani’s Record on Accessibility and Inclusion (Able News)

Federal Cuts Will End Nutrition Education Program for New Yorkers on SNAP (City Limits)

Nebraska Passes Special Ed Bill Without Proposed Protections for Students Measure would have stopped districts from denying transfers to kids with IEPs. Instead, it applies to siblings only — and lifts ban on suspensions. (The 74 Million)

NC lawmakers nearing deal to fund Medicaid as short session kicks off  Republican legislators plan to approve Democratic Gov. Josh Stein’s $319 million Medicaid ask. (WRAL.com)

Why families caring for children with disabilities are suing Washington state They’re trying to bring a class-action suit, arguing the state has failed to provide services promised under Medicaid to thousands of children. (Washington State Standard)

WV House spent $114K on school funding study, didn’t implement recommendations this year West Virginia ranks near the bottom of all states for its amount of funding for special education despite the rate of special education students being the nation’s fifth highest. (West Virginia Watch)

GOOD IDEAS

Local author empowers people with disabilities through creative writing workshop (News 8000)

Homepage for April 17, 2026

Pa. Gov. Shapiro signs orders to bolster disability services, data protections (WESA)

Inside Trump’s 3.5% budget boost for special education (K-12 Dive)

Explainer from on the President’s FY 2027 Budget  (NCIL)

The Digital Accessibility Deadline Is Here. Schools Aren’t Ready. (EdSurge)

Medicaid fraud at Minnesota autism centers was said to be rampant. Two people have been charged. (Star Tribune)

Minnesota’s plan to fight fraud underway as federal Medicaid money remains frozen (MPR News)

Kentucky auditor claims Medicaid fraud; Beshear pushes back (WASS 11)

Does Tylenol Increase Autism Risk? A New Study Has Answers (MedPage Today)

Florida sits on millions in unspent funds for disability care while thousands wait  (Fox News 13)

Florida caregivers struggle amid disability services waitlist: ‘No one should ever experience this’  (Fox 13)

CT governor backs off plan to sunset Community First Choice home care program (CTmirror.com)

A bill explores making NH a ‘technology first’ state on disability. Here’s what that means. (New Hampshire Bulletin)

STUDY: Parents of Kids With Neurodevelopmental Disorders May Face Greater Heart Risk (MedPage Today)

Rent Will Get a Majority Neurodiverse, Disabled NYC Staging  (Playbill)