Intellectual and Developmental Disability News

More Disability News Links for Week Ending April 1, 2023

From a guardianship bill of rights to why Back women at the intersection of race, gender, and developmental disability are nearly nonexistent in the workforce,  here are more stories from around the web for the week ending Saturday, April 1, 2023.

A bill introduced in the U.S. Senate would establish a national council tasked with identifying best practices for helping individuals avoid or leave guardianships and how to modify such arrangements. Senators Want ‘Guardianship Bill Of Rights’ (Disability Scoop)

DEI Has Long Overlooked Cognitive Diversity. Unfortunately, Developmentally Disabled Black Women Suffer The Most (essence.com)

Link to autistic community helps this family thrive (Bloom blog)

‘Everyone’s story is different’: Entering the workforce with a developmental disability (RochesterFirst.com)

Rochester McDonald’s employee acting as a voice for developmental disabilities in workforce (spectrumlocalnews.com)

Supreme Court to Hear Dispute Between Maine Hotel and Disability Activist (nytimes.com)

More than just a workout: CNN Hero helps athletes with intellectual disabilities get fit and build connections (cnn.com)

This one’s from earlier in the month: Disabled students at higher risks for arrests, dropping out and being unready for adulthood (youthtoday.org)

The Boost’s Summer Sleepaway Camp Special

Updated March 2024

Welcome to The Boost’s second-annual Summer Sleepaway spectacular.

The camps listed below are focused on programs for people with a range of developmental disabilities. They offer summer experiences from traditional outdoor activities to teen travel and college readiness programs.

This is not an endorsement of any particular camp. Always ensure it meets the needs of your loved ones and please do your due diligence.

A few things to note:

This list is designed to grow! I’d love to hear about others you know, as well as any positive and/or negative experiences you might have had with any on this list. You can contact me here.

CAMP AKEELA & BEYOND AKEELA

CAMP ANNE

CAMP DUNNABECK AT KILDONAN

CAMP LEE MAR

CAMP PA-QUA-TUCK

CAMP PATHFINDER

CAMP RAMAH IN THE BERKSHIRES: BREIRA B’RAMAH & TIKVAH

CAMP RAMAPO

CAMP REECE

CAMP SKYWILD

CAMP WILTON

KAMP KIWANIS

LIONS CAMP BADGER

THE LODGE 

ROCHESTER ROTARY SUNSHINE CAMP

SUMMIT CAMP & TRAVEL

TRANSITIONS ADIRONDACK EXPRESSIONS ART CAMP

TRANSITIONS SUMMER IMMERSION EXPERIENCES

YAI MAINSTREAMING AT CAMP (MAC)

The Boost’s 2024 Summer Sleepaway Camp Special

Updated March 2024

Welcome to The Boost’s second-annual Summer Sleepaway spectacular.

The camps listed below are focused on programs for people with a range of developmental disabilities. They offer summer experiences from traditional outdoor activities to teen travel and college readiness programs.

This is not an endorsement of any particular camp. Always ensure it meets the needs of your loved ones and please do your due diligence.

A few things to note:

This list is designed to grow! I’d love to hear about others you know, as well as any positive and/or negative experiences you might have had with any on this list. You can contact me here.

CAMP AKEELA & BEYOND AKEELA

CAMP ANNE

CAMP DUNNABECK AT KILDONAN

CAMP LEE MAR

CAMP PA-QUA-TUCK

CAMP PATHFINDER

CAMP RAMAH IN THE BERKSHIRES: BREIRA B’RAMAH & TIKVAH

CAMP RAMAPO

CAMP REECE

CAMP SKYWILD

CAMP WILTON

KAMP KIWANIS

LIONS CAMP BADGER

THE LODGE 

ROCHESTER ROTARY SUNSHINE CAMP

SUMMIT CAMP & TRAVEL

TRANSITIONS ADIRONDACK EXPRESSIONS ART CAMP

TRANSITIONS SUMMER IMMERSION EXPERIENCES

YAI MAINSTREAMING AT CAMP (MAC)

The Boost’s Day Camp Special

Updated March 2024

Welcome to the The Boost’s second annual Summer Sleepaway special.

The camps (and one summer respite program) listed below, which are mostly in the LoHud area, are focused on programs for people with a range of developmental disabilities.

A few things to note:

This list is designed to grow! I’d love to hear about others you know. And if you’ve had any positive and/or negative experiences with any of the camps on the list that you’d like to share you can  contact me here.

CAMP JOY

CAMP SUNSHINE & SUNSHINE TEENS

CAMP TWELVE TRAILS

CAMP VENTURE

CAMP VICTORY

GREEN CHIMNEYS (2 camps)

HILLSIDE CAMP

CLEARPOOL

JIMMY VEJAR SUMMER FUN

NEW COUNTRY DAY CAMP @ 14TH STREET Y

NORTH EAST WESTCHESTER SPECIAL RECREATION CAMP

SOUTHEAST CONSORTIUM DAY CAMPS (2) and SUMMER TEEN LIFE & LIFE EXPERIENCE PROGRAMS

SCARSDALE DAY CAMP (CAMP WAPETUCK & CAMP PATHUNKE)

EASTCHESTER DAY CAMP (CAMP GALAXY)

TEEN LIFE PROGRAM

LIFE EXPERIENCE PROGRAM

TRANSITIONS SUMMER IMMERSION EXPERIENCES

The Boost’s 2024 Day Camp Special

Updated March 2024

Welcome to The Boost’s second annual summer day camp special.

The camps (and one summer respite program) listed below, which are mostly in the LoHud area, are focused on programs for people with a range of developmental disabilities.

A few things to note:

This list is designed to grow! I’d love to hear about others you know. And if you’ve had any positive and/or negative experiences with any of the camps on the list that you’d like to share you can  contact me here.

CAMP JOY

CAMP SUNSHINE & SUNSHINE TEENS

CAMP TWELVE TRAILS

CAMP VENTURE

CAMP VICTORY

GREEN CHIMNEYS (2 camps)

HILLSIDE CAMP

CLEARPOOL

JIMMY VEJAR SUMMER FUN

NEW COUNTRY DAY CAMP @ 14TH STREET Y

NORTH EAST WESTCHESTER SPECIAL RECREATION CAMP

SOUTHEAST CONSORTIUM DAY CAMPS (2) and SUMMER TEEN LIFE & LIFE EXPERIENCE PROGRAMS

SCARSDALE DAY CAMP (CAMP WAPETUCK & CAMP PATHUNKE)

EASTCHESTER DAY CAMP (CAMP GALAXY)

TEEN LIFE PROGRAM

LIFE EXPERIENCE PROGRAM

TRANSITIONS SUMMER IMMERSION EXPERIENCES

Bill Proposes that HCBS Become a Mandatory Medicaid Benefit

A federal proposal to make Home and Community-Based Services (HCBS) a mandatory Medicaid benefit is back in play.

The HCBS Access Act, first introduced in the summer of 2021, is a “companion” bill to Better Care Better Job Acts, a proposal that would give states a 10 percentage point increase in federal Medicaid matching funds for services. That bill was reintroduced in January.

Backers say the Access Act would “eliminate waiting lists for community-based services over time by increasing funding for the program, providing grants to states to make Home and Community-Based Services a mandatory Medicaid benefit,” reports Disability Scoop.

Currently, only institutional care is automatically covered by Medicaid. People with developmental disabilities need waivers to access these services, and waitlists can be long.

More challenging, once a waiver has been approved, waitlists for the services themselves are notoriously long as well. There are more than 650,000 people nationwide still stuck on waiting lists who are not getting the services they need, according to the Arc of the U.S. In 2021, people on waiting lists waited an average of 45 months to receive HCBS waiver services, according to the Kaiser Family Foundation. People with intellectual developmental disabilities, it noted, waited the longest for services, 67 months on average.

In New York, the waiver is administered by OPWDD. It’s OPWDD’s primary funding mechanism for supporting individuals in the community by providing a variety of services and supports individualized to meet each person’s needs, such as habilitation services, respite care and service coordination.

Congresswoman Debbie Dingell (MI-06), Senator Bob Casey (D-PA), and Congressman Jamaal Bowman Ed.D. (NY-16) introduced the HCBS Access Act.

 

Supreme Court Sides with Disabled Student in Special Ed Case

It’s unanimous. All nine Supreme Court justices ruled in favor of the plaintiff, Miguel Luna Perez, in Perez v. Sturgis Public Schools, allowing him to pursue damages claims under the Americans with Disabilities Act without first exhausting the process required by the Individuals with Disabilities Education Act (IDEA).

The court held that IDEA’s exhaustion requirement does not preclude the ADA lawsuit because the relief Perez seeks (i.e., compensatory damages) is not something IDEA can provide.

This opens the door for other disabled students who feel their schools have failed them. The outcome “holds consequences not just for Mr. Perez but for a great many children with disabilities and their parents,” Justice Neil Gorsuch wrote for the unanimous court.

However, notes K12dive.com, the ruling does not address whether IDEA’s requirement to exhaust its administrative process “can be sidestepped in cases where completing the process would be ‘futile’ and whether ADA should provide financial compensation to Miguel Perez, the plaintiff.”

Perez, who is deaf, attended schools in Michigan’s Sturgis Public School District from ages 9 through 20. He was denied a Free Appropriate Public Education (FAPE) for years, reports specialeducationaction.com, with the district advancing him “from grade to grade and inflat[ing] his grades to the point he repeatedly made honor roll, even though he couldn’t read or write — and then just before graduation told his family he would receive a certificate of completion but not a high school diploma.”

According to the court’s written opinion, when Sturgis announced that it would not permit Perez to officially graduate, he and his family filed an administrative complaint with the Michigan Department of Education alleging (among other things) that Sturgis failed to provide him a free and appropriate public education as required by the IDEA. (They claimed that Sturgis supplied Mr. Perez with unqualified interpreters and misrepresented his educational progress.)

The parties reached a settlement in which Sturgis promised to provide the forward-looking relief Perez sought, including additional schooling. Perez then sued in federal district court under the Americans with Disabilities Act (ADA) seeking compensatory damages. Sturgis moved to dismiss, claiming that Perez was barred from bringing his ADA claim because it requires a plaintiff “seeking relief that is also available under” IDEA to first exhaust IDEA’s administrative procedures. The district court agreed and dismissed the suit, and the Sixth Circuit affirmed.

‘These Actors Just Blossomed’: An Interview with the Cinematographer of ‘Champions’

Well, not my interview. Motionpictures.org spoke with cinematographer C. Kim Miles, whose work, in addition to Champions, includes The Flash and TV’s Yellowjackets.

The movie, which hit screens earlier in March, is about a disgraced minor league basketball coach ordered by the court to manage a team of players, called The Friends, all of whom have developmental disabilities.

From behind the camera, Miles had an interesting perspective on the players, and he has stories. A preview: “Any time The Friends were on set, that was always a treat—if we could get them to stop bouncing the basketballs. That was the thing. On day three of the shoot, as soon as they saw basketballs, they started shooting hoops. It took Bobby fifteen minutes to calm them down. Then Woody shows up, and what’s the first thing he does? Starts shooting hoops.”

Read the interview here.

Is an AI Tool Discriminating Against People with I/DD?

The AP has a cautionary tale about the biases that can be baked into artificial intelligence tools.

The story comes out of Pennsylvania, where parents with developmental disabilities had their baby taken away from them and put into foster care. “They wonder if an artificial intelligence tool that the Allegheny County Department of Human Services uses to predict which children could be at risk of harm singled them out because of their disabilities,” the AP writes.

The U.S. Justice Department is now asking the same question. The AP did a deep dive into the case, laying out the issues with the algorithm and explaining the family’s story. Read it here.

Links to More Stories on Disability Bias in AI

Disability Bias Should Be Addressed in AI Rules, Advocates Say (Bloomberg Law)

Common AI language models show bias against people with disabilities: study (The Hill)

Photo image: Pixabay

More Disability News Links for Week Ending March 25, 2023

From an in-depth look at the DSP budget crisis to the rise in autism diagnoses, here’s a collection of additional stories from around the web for the week ending Saturday, March 25, 2023.

An informative look at how Gov. Hochul’s budget would affect direct support professionals and home care workers: ‘We don’t get enough to survive:’ Care workers seek better pay (Times Union)

Hey, Gov. Hochul, pay attention: NJ plans $165M boost to staffing at group homes, day programs for people with disabilities (northjersey.com)

Autism Now Affects 1 In 36 Kids, CDC Says (Disabilityscoop.com)

A look at the cuts affecting special education found in the House Republican leaders’ slash-and-burn preview: Numbers: What potential budget cuts to Ed Dept would look like (Highereddive.com)

Disneyland Rebuilds Mickey’s Toontown From The Ground Up For Kids Of All Abilities (Disabilityscoop.com)

Horrible news from New Mexico: ‘Shocking and intolerable’: In wake of client injury, state to do wellness checks within DD program (ABQjournal.com)

‘Hire Disabled Writers, Not Just a Disability Consultant,’ Demands Letter From Dozens of Creators (Variety.com)

An interesting read from Australia: Inclusion means everyone: 5 disability attitude shifts to end violence, abuse and neglect (theconversation.com)